CSER at ELSI Congress 2017

CSER research in Ethical, Legal, and Social Implications (ELSI) issues will be presented at the upcoming ELSI Congress 2017. Titled "Genomics and Society: Expanding the ELSI Universe", this conference highlights the myriad of ELSI considerations that stem from genomic research. Attendees including lawyers, scientists, and clinicians in the fields of academia, government, and industry, will be presenting the latest data and insight about the current and future state of genomic research. ELSI Congress 2017 is hosted on June 5 to June 7 in Farmington, Connecticut, with activitines in both the Jackson Laboratory for Genomic Medicine and UConn Health.

A full schedule of all presentations and posters can be found online on the ELSI Congress website. 

Below are some examples of CSER funded work that will be presented at ELSI Congress 2017. A copy of all CSER presentations and posters at ELSI Congress 2017 can be found in PDF format here.

June 5 2017

Paper Session A4. Time: 10:45am - 12:15pm (CDT). Location: UConn Patterson Auditorium.

  • Gail Henderson, Barbara Bernhardt, and Allison Werner-Lin will be presenting research conducted at their CSER sites, with each presentation applying a critical eye to the preconceived expectations of genomics, as well as lessons learned with regards to what genomics can actually do. 

Panel Session: Developing the Law and Policy Universe to Meet the Challenges of Genomics. Time: 1:30pm - 3:00pm (CDT). Location: UConn Massey Auditorium.

  • CSER investigators Susan Wolf, Ellen Clayton, and Amy McGuire, joined by other investigators, will be discussing development of a legal and policy environment to meet the challenges and complications of genomics.

Poster Session: Time: 5:30pm - 7:30pm (CDT). Location: Jackson Laboratory (JAXGM) Helix Cafe.

  • Malia Fullerton will be presenting research highlighting the perspectives of community-based providers towards genomics in family medicine.
  • Michele Gornick will present findings from their CSER MI-ONCOSEQ project centred on adolescent perspectives about participating in translational, pediatric sequencing research.

June 6 2017

Plenary Talk. Ethics & Omics: The Return of Results in the Clinic. Speaker: Jim Evans. Time: 8:30am - 10:00am (CDT). Location: UConn Academic Rotunda.

Panel Session: Should Every Newborn be Sequenced at Birth? Crafting Policies to Guide Genomic Practice. Time: 10:30am - 12:00pm (CDT). Location: JAXGM Holt Conference Room

  • CSER investigator Barbara Koenig will be participating in a workshop session exploring ELSI topics related to newborn sequencing and the development of policies to inform sequencing of newborns.

Panel Session: Reporting Dilemmas in Pediatric Genomics. Time: 1:30pm - 3:00pm (CDT). Location: JAXGM Auditorium.

  • CSER investigator Kyle Brothers, Allison Werner-Lin, and Ingrid Holm are part of a panel exploring the challenges and dilemmas that occur when reporting and returning genomic results in pediatric settings.

Poster Session: Time: 5:30pm - 7:30pm (CDT). Location: Jackson Laboratory (JAXGM) Helix Cafe.

  • Barbara Biesecker is presenting the results of a randomized controlled trial to evaluate whether a web-based platform for returning carrier results is non-inferior to traditional results return procedures.

June 7 2017

Plenary Talk. Reinventing ELSI. Speaker: Wylie Burke. Time: 8:30am - 10:00am (CDT). Location: UConn Academic Rotunda.

Plenary Panel. Genomics and Society: Expanding the ELSI Universe. Speakers: Jim Evans, Wylie Burke. Time: 2:45pm - 3:30pm. Location: UConn Academic Rotunda.

Panel Session: The Importance of Choice About Secondary Results from Genomic Sequencing: Opportunities and Challenges for Parents and Prospective Parents. Time: 1:15pm - 2:45pm (CDT). Location: UConn Massey Auditorium

  • CSER investigators Holly Tabor and Barbara Biesecker are participating in a panel discussing the importance of participant choice in the return of secondary findings, and the challenges that parents face when receiving these results.